The Inflation Reduction Act adds new barriers to curing rare disease ...Middle East

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The Inflation Reduction Act adds new barriers to curing rare disease
Those diagnosed with a rare disease forever remember those initial moments. Shock, of course, followed by questions. Is there a cure? Or at least a treatment? In the vast majority of cases, the answer is, sadly, "no." Of the more than 7,000 rare diseases, 95 percent lack an FDA-approved treatment. My company is dedicated solely to identifying, developing, and delivering life-changing therapies for rare diseases. And despite the many challenges we've faced — the path in rare disease is never easy — we've made encouraging progress toward treating rare kidney disease.  But last year, a new obstacle emerged — thanks to policymakers in Washington. A provision of the Inflation Reduc

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