Dying Patients With Rare Diseases Struggle to Get Experimental Therapies ...Middle East

News by : (KHN) -
At 15, Autumn Fuernisen is dying. She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure or way to slow it down: juvenile-onset Huntington’s disease. “There’s lots of things that she used to be able to do just fine,” said her mom, Londen Tabor, who lives with her daughter in Gillette, Wyoming. Autumn’s speech has become slurred and her cognitive skills slower. She needs help with many tasks, such as writing, showering and dressing, and while she can walk, her balance is off. Autumn has been turned down for clinical trials because she is too young. “It is so frustrating to me,” Tabor said. “I would sell my soul to try to get any type [of

Hence then, the article about dying patients with rare diseases struggle to get experimental therapies was published today ( ) and is available on KHN ( Middle East ) The editorial team at PressBee has edited and verified it, and it may have been modified, fully republished, or quoted. You can read and follow the updates of this news or article from its original source.

Read More Details
Finally We wish PressBee provided you with enough information of ( Dying Patients With Rare Diseases Struggle to Get Experimental Therapies )

Last updated :

Also on site :

Most Viewed News
جديد الاخبار