“I felt like my marriage was crumbling,” Heming Willis, 49, told Vanity Fair in a new story. She recalled asking herself, 'What is going on? This is not the person that I married. Something is just so off.' And I just couldn’t figure it out."
Willis was later diagnosed with aphasia and then frontotemporal dementia, a disease that affects the frontal and temporal lobes of the brain, which control a person’s language and behavior.
(Photo by ANGELA WEISS/AFP via Getty Images)(Photo by ANGELA WEISS/AFP via Getty Images)
"FTD doesn’t scream, it whispers," Emma said. "It’s very gray to know where Bruce stopped and where his disease kicked in."
"Conversations weren't really aligning anymore, and our relationship started to shift. It was hard to put my finger on why and what was happening," she told the publication.
"It’s like you're banging your head against a brick wall. You're just like, 'Where is the miscommunication coming? What is happening within our relationship?'"
Heming Willis struggled significantly at this time.
What Made Emma Heming Willis Decide to Write a Book?
While several publishers reached out asking for a tell-all, Heming Willis declined. After Maria Shriver, who runs the Penguin Life imprint The Open Field, reached out and encouraged her to share her story about caregiving interwoven with expert advice, she knew she was in the right hands. The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path is out now.
Related: How Bruce Willis Met Wife Emma Heming Willis — and Why She Was a ‘Sweaty Mess’
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