Singer Celine Dion suffers from Stiff Person Syndrome

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Singer Celine Dion suffers from Stiff Person Syndrome

Celine Dion’s sister has shared an update on the singer’s health after she was diagnosed with a rare condition that meant she was forced to cancel her world tour.

Earlier this year, Dion cancelled her Courage World Tour after suffering “severe and persistent” muscle spasms which have prevented her from performing.

The Canadian singer, 55, had previously confirmed she was suffering from a rare neurological condition called stiff person syndrome.

    Stiff person syndrome affects people, mainly in their 40s to 60s, with persistent spasms in their lower limbs and torso, according to University College London.

    Sensory stimulation such as noise and light touch can also bring on severe spasms.

    Dion’s sister Claudette spoke about the “Power of Love” singer’s condition in an interview with the Canadian publication Le Journal de Montréal. She revealed that their sister Linda had moved in to live with Dion in her home.

    “[Dion is] listening to the top researchers in the field of this rare disease as much as possible,” Claudette stated.

    “I honestly think that she mostly needs to rest. She always goes above and beyond; she always tries to be the best and top of her game.”

    Speaking about Dion’s decision to step away from performing, she continued: “At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”

    She added that Dion had been unable to “find any medicine that works”, but that “having hope” was still “important”.

    There is no cure for SPS but some treatments exist to help manage the symptoms or slow the progression of the condition.

    A number of medicines and therapies exist with patients able to seek out immunotherapy or disease-modifying treatments.

    According to the National Institute of Neurological Disorders, Stiff person syndrome (SPS) is a rare neurological disorder that causes progressive muscle stiffness and repeated and painful episodes of muscle spasms.

    The rigidity's severity fluctuates, growing better, then worse, randomly.

    Spasms can also be triggered by a number of stimuli such as sudden noise, light physical contact or when exposed to the cold.

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