While speaking to Diane Sawyer during the ABC News special Emma and Bruce Willis: The Unexpected Journey, Heming Willis, 47, shared an update about Willis' health and revealed he was living in a separate home from her and their daughters.
"I think that they did a beautiful job with amplifying FTD awareness, as well as shining a spotlight onto caregivers," Heming Willis said in a video. "What I knew is that by sharing some of our intimate information that we would see these two camps. It would be people with an opinion versus people with an actual experience."
After noting that she expected for people to have opinions on how she's handled her role as a caregiver, Heming Willis continued, "That is what caregivers are up against. Judgement from others and criticism from others."
"Nothing changes an opinion quite as powerfully as when you have an experience," she said, sharing what a therapist previously told her. "Even if someone is closely familiar with dementia or the condition you are caring for, they aren't in your home, so they don't know how your person is behaving or your family dynamics."
"That’s who I share for and so I can build a deeper connection with a community that understands this journey," the former model concluded.
A post shared by Emma Heming Willis (@emmahemingwillis)
Nearly one year later, his family shared that he had been diagnosed with frontotemporal dementia. The condition is “an umbrella term for a group of brain diseases that mainly affect the frontal and temporal lobes of the brain,” per The Mayo Clinic. “These areas of the brain are associated with personality, behavior and language.”
Heming Willis continued, “To go in the complete opposite of that was alarming and scary.”
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