About 50 local families receive a childhood cancer diagnosis every year. While the doctors and nurses at Golisano Children’s Hospital find innovative ways to treat those kids, other organizations also work to support their families.2-year-old Kate Matteson is full of spunk and sass. But back in February, she got sick — really sick. Doctors first thought it was an ear infection and then the flu.“I’m like something’s not right, something is not right, her face is swollen, she can’t walk, she still has a fever of 105, this is not normal,” Kelly Matteson said.So, they did blood work. It was cancer. Acute Myeloid Leukemia with the very rare RAM Immunophenotype, only about a dozen children are diagnosed with it every year in the United States. “I felt like the world was swept out from my feet and my daughter is just lying there, she’s not moving, not talking, just crying and not wanting to be touched because everything hurt,” Matteson says.
Kate was the first child in the world to receive a very particular treatment schedule, “one of the medications she got, it’s not new but it’s a medication that’s used actually for ovarian cancer, “ Matteson explains. It worked well enough for her to be able to get a bone marrow treatment that has now put her in remission. “Because of the treatments she had at Golisano, she’ll be able to help other kids and she already has,” says Matteson.
Kelly is now finally able to catch her breath, and aside from the doctors and nurses at Golisano Children’s Hospital who saved her baby, she’s also grateful for a local organization called C.U.R.E. Childhood Cancer Association. “There’s only certain people that could in that situation, be able to help families like ours and I don’t know what I would have done without them,” Matteson recalls.C.U.R.E. connects with families early on and takes care of some of the small things. “They helped us with food vouchers, parking vouchers, gave us amazing gifts for both our daughters just to help make things a little easier because we also weren’t with our older daughter Kasey for five months and that was really hard on her so the support they give, it goes very unrecognized I don’t think people know how much they have to offer,” Matteson says.Monroe County Undersheriff Korey Brown knows exactly what C.U.R.E. offers. The organization was there for his family too when his grandson was fighting childhood cancer.“He was in the hospital with three other little boys and none of them made it, he was the only one who made it,” Brown tells News10NBC.And so now, every September, Brown runs a 5K every day in memory of those boys and other local children lost and in honor of the kids who have survived.“We just try to raise awareness for childhood cancer and give back to the community that gave so much to me,” Brown says.Brown started the 5K-a-days in 2020, and they’ve helped to raise more than $50,000 for C.U.R.E. since, so that organization can continue to help kids like Kate.Kate is planning to meet her donor in June of next year.
For more information or to donate to Undersheiff Brown’s fundraiser for C.U.R.E. Childhood Cancer, Click Here.
For more information or to sign up for the Matteson’s golf tournament that partially supports C.U.R.E. Childhood Cancer, Click Here.
A 2-year-old’s cancer diagnosis led her mom to a local group that quietly helps families when they need it most WHEC.com.
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