I’ve spent this year in a split-screen. On one side, I’ve had the best professional run of my life. On the other, a law that’s starting to take shape is threatening to make people like me suffer and disappear.
On July 4, 2025, President Donald Trump signed the One Big Beautiful Bill Act. By the Congressional Budget Office’s own accounting, its Medicaid provisions cut around $1 trillion in federal spending over a decade, and will leave an estimated 7.5 million more people uninsured by 2034. Count the rest of the law’s health provisions, and the coverage loss climbs to an estimated $10 million. The Center for American Progress notes the spending cuts almost exactly match the law’s other half: about $1 trillion in tax cuts flowing to the top 1% of households, nearly half of that to roughly 200,000 households making more than $2 million a year.
Then, there’s the cost no budget table ever lists. Before the bill reached its final, larger form, three physician-researchers published a peer-reviewed analysis in the Annals of Internal Medicine projecting what the cuts would do to actual lives. Their mid-range estimate:16,642 additional preventable deaths a year.
We must not trade disabled peoples’ lives in exchange for tax cuts for the ultra-wealthy. And we must not sacrifice all of the progress the U.S. has made.
Yesterday marked its 36th anniversary. The show I’m proudly in, Furious, premieres today.
Representation has quietly become a consolation prize. Even though the percentage is still low, there are more disabled people on television than ever, and I’m grateful to be one of them. But the applause and the cuts are happening simultaneously, to the same people, and almost no one with power experiences that as a contradiction.
Many people genuinely believe those are the same thing. Visibility is a form of protection and a society putting disabled people on television would surely not also strip away the thing that gets them out of bed. It’s a comforting belief, but in modern America, it is false. Visibility is cheap. It costs the country nothing. Care is what costs, and care is what was cut.
Disabled people see this gap with clarity. I’m telling you what it looks like from here because the view is unobstructed, and because I am, for now, still in a position to describe it.
I’ve built a career on finding the joke in exactly this kind of absurdity, and I have to find it here, because the alternative is worse.
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