Family embarking on epic road trip to raise money, awareness of daughter’s rare disease ...Middle East

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By Ari Hait Click here for updates on this story     STUART, Florida (WPBF) — A Treasure Coast family is soon embarking on an epic road trip, traveling across the country to raise awareness of a rare disease. Emilia Turner was only 4 months old when a doctor suggested she may suffer from a disease called Neurofibromatosis Type 1, more commonly known as NF1. “It was a completely out-of-body experience, just absolutely overtaken with worry,” said Sarah Turner, Emilia’s mother. “First of all, we didn’t know anything about what that was or what that meant,” said Robbie Turner, Emilia’s father. “So, the first thing we’re doing is we’re doing our own research about it.” And they lear

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