Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit ...Middle East

BusinessWire India New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the health think tank, Integrated Health and Wellbeing Council in collaboration with AstraZeneca to create awareness on rare diseases and their effective management.

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