The Delhi High Court has constituted a five-member committee for the implementation of the National Rare Disease Policy-2021, including procurement and "indigenisation" of therapies and drugs for patients who are mostly children. The members of the National Rare Diseases Committee would include secretary, Union health ministry, or one of his nominee, director general of the Indian Council for Medical Research (ICMR), the Drug Controller General of India, and Dr Madhulika Kabra and Dr Nikhil Tandon from AIIMS-Delhi, the court ordered. It was dealing with a batch of petitions concerning the treatment of several children suffering from rare diseases. Justice Prathiba M Singh said urgent steps i
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