ORDI to hold event to raise awareness about rare diseases ...Middle East

The Organization for Rare Diseases India (ORDI) will hold an event on March 12 in Delhi to raise awareness and advocate better policies and access to treatment for patients with rare diseases. An annual event by ORDI to commemorate World Rare Disease Day, ''RaceFor7'' is a seven kilometer walk/run/cycling, symbolizing 7,000 known rare diseases, the average of seven years it takes to diagnose a rare disease and the 70 million estimated rare diseases patients in India, officials said.

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